CHD MEDICATIONS 101

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-A baby with CHD is born every 15 minutes in the U.S. 

-More than 1.4 million adults are living with CHD every year in the U.S.

-These children and adults face challenges under the radar, even during National 

  Heart Month when acquired heart disease is front and center. 

-Research for CHD is grossly underfunded.  

(CDC)

-CHD is the number #1 cause of birth-defect related deaths for children. 

-CHD family members are 30% more likely to suffer from depression and anxiety.

 -Heart Warriors are 50% more likely to receive special education services when compared 

  to children without birth defects 

-Once they reach adulthood, close to 50% of Heart Warriors report having a mood or 

  anxiety disorder. 

-It is estimated that only 10% of adult Heart Warriors receive the cardiac care that they 

  need.

-More than 30% of adolescents are lost to care.  

 -The families of Heart Warriors face multiple challenges. Unexpected costs such as co-

  pays, out-of-pocket deductibles, the cost of traveling, and medication expenses cause 

  financial problems that are often exasperated by the need to resign from or reduce hours 

  at work to care for their child. This contributes to their quality of life when combined with 

  the stress of having a child with special health needs.  

(CDC)

-Talk to your legislators about CHD awareness and funding for research and resources. 

-Sign petitions to increase awareness, research and resources for CHD.

-Donate to organizations that concentrate on CHD only.  A very small percentage of the    

 American Heart Association's funding goes to CHD. 

-If you know someone who has been impacted by CHD, ask them how you can help.

-Support and follow CHD organizations on social media. Share their posts!

We are always looking for new partners when it comes to awareness and resources. 

Contact us with your ideas on ways that we can collaborate.