OUR MISSION

TO ENHANCE THE LIVES OF THOSE IMPACTED BY 

CONGENITAL HEART DISEASE

WE PROVIDE:

-Financial Assistance (medical expenses, pharmacy costs, household bills, etc) for families and individuals impacted by CHD.  Access our application below.

-Wellness Assistance in the form of:

 socialization/mentoring opportunities, connections to resources, gift cards for "date nights", and vouchers for massages/yoga classes for those impacted by CHD.  Access our application below.

-Scholarships for high school students with a CHD diagnosis. Application will reopen in 2024. 

-Campaigns that provide items to help brighten the day of a baby, child, teen, and adult who is hospitalized in a CHD cardiac unit. Parents/caregivers are included as well!

-Educational events, workshops, and zoom sessions.

WHAT IS CONGENITAL HEART DISEASE (CHD)?

 Congenital heart disease is the most common birth defect in the United States.  Its prevalence is on the rise while other forms of birth defects have remained stable.  We believe this is due to the lack of funding for CHD research, especially when compared to other childhood diseases. There are many forms of CHD from ventricular septal defects (holes in the chambers of the heart) to complex abnormalities such as Transposition of the Great Arteries (the pulmonary artery and the aorta are switched).

Victoria was born in 1997 with several heart defects that required four open heart surgeries with the last one occurring in July of 2021. 

The emotional and financial toll of this journey was, at times, overwhelming. 

 The lessons learned along the way inspired Victoria and her parents to  launch a foundation to help other  CHD families connect with each other, find therapeutic resources, and pay for the financial needs that accompany hospital stays and on-going medical testing.

The Victoria Ciara Foundation  also works to increase awareness of congential heart disease; specifically around its prevalence, how it impacts patients and their families, and how it differs from acquired heart disease and other childhood medical conditions.

TRANSPARENCY  AND GOOD STEWARDSHIP ARE IMPORTANT TO US

-Our organization is currently run by all volunteers.

-Our  990 can be found at  Tax Exempt Organization Search Details | Internal Revenue Service (irs.gov) 

-Our Tax ID #  is 87-3434529.