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TO ENHANCE THE LIVES OF THOSE IMPACTED BY 

CONGENITAL HEART DISEASE

WE PROVIDE:

-Financial Assistance for families and individuals impacted by CHD.  

-Wellness Assistance in the form of:

 connections to resources, mentoring opportunities, gift cards for "date nights", and vouchers for massages/yoga classes.

-Scholarships for high school students with a CHD diagnosis.  

-Campaigns that provide items to help those who are hospitalized in a CHD cardiac unit. Parents/caregivers are included as well!

-Educational and socialization zoom sessions.

WHAT IS CONGENITAL HEART DISEASE (CHD)?

 Congenital heart disease is the most common birth defect in the United States.  It is the presence of a cardiac defect that develops prior to birth. Many babies require multiple surgeries within their first few years of life. Most individuals require lifelong specialized cardiac care.  

Victoria was born in 1997 with several heart defects that required four open heart surgeries with the last one occurring in July of 2021. 

The emotional and financial toll of this journey was, at times, overwhelming. 

 The lessons learned along the way inspired Victoria and her parents to launch a foundation to help other CHD families and adults connect with each other, find therapeutic resources, and pay for the financial needs that accompany hospital stays and on-going medical testing.

The Victoria Ciara Foundation also works to increase awareness of congenital heart disease; specifically around its prevalence, the impact it has on patients and their families, and how it differs from acquired heart disease and other childhood medical conditions.

TRANSPARENCY  AND GOOD STEWARDSHIP ARE IMPORTANT TO US

-Our organization is currently run by all volunteers.

-Our  990 can be found at  Tax Exempt Organization Search Details | Internal Revenue Service (irs.gov) 

-Our Tax ID #  is 87-3434529.